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  • Oliviero Beha

    Una lettera al giorno al ministro della salute

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    Intanto che l'Italia si adegui all'Oms. E poi che non ci vengano a parlare di soldi pubblici che non ci sono con il deficit quando la sanità pubblica è stata, è e continua a essere la principale greppia per il finanziamento della politica, dei politici, dei privati che fanno politica privatizzandola.o.b._________________Iniziativa “Lettera aperta” dei malati di CFS e Fibromialgia al Ministro della Salute.L'iniziativa ha la forma "una lettera al giorno": una trentina di volontari spediscono le lettere in un giorno prefissato del mese, finché non ci sono riscontri. Lo scopo che ci prefissiamo è ottenere il riconoscimento della Sindrome da Affaticamento Cronico e della Fibromialgia anche in Italia, come malattie croniche, a seconda dei livelli anche invalidanti. I criteri di diagnosi sono stati stabiliti nel 1990, l'OMS le riconosce, molti Stati della Comunità Europea le riconoscono, l'Italia no. Per cui ci dobbiamo pagare le cure per tutta la vita, non abbiamo diritto a esenzione dal ticket, non siamo tutelati sul posto di lavoro come gli altri malati cronici, non abbiamo diritto al riconoscimento di punteggi di invalidità neanche nei casi più gravi e refrattari alle cure.

    La cosa più incredibile è che siamo tantissimi: per la fibromialgia gli studi epidemiologici europei accertano una casistica dal 2,5 al 4% della popolazione, vicina a quella del diabete; semplicemente, in barba all’OMS, il Ministero della Salute non la conosce, dunque non la riconosce e non la prende in considerazione. Lo stesso vale per la maggioranza dei medici di base e delle commissioni per invalidità ed esenzione.

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